Anslie's biopsy results came back normal so that is really encouraging. It looks like all that is wrong with her is a bad case of GERD (acid reflux). Basically, it hurts to eat so she just doesn't. Or doesn't eat more than enough to curb her hunger. Very sad. She has trained herself to starve because that feels better than eating food. It breaks my heart.
Unfortunatley Anslie lost weight from her last weigh in so she now has a feeding tube (or NG tube). It was rough having to hold her down while they inserted it into her nose and down to her stomach. She had her first feeding this morning and slept through most of it. She tolerated 5oz of the formula and still ate half a cookie when she woke up from her nap. That's encouraging! She will get 5 oz of formula 4 times per day. This will hopefully give her the nutrients she needs to pack on some weight (so we can get the heck out of here) and also stretch her stomach out a little bit so that she can stand to eat more in one sitting.
We hope that with the help of the forced feedings we can get her home by Sunday at the latest. They want to leave the tube in for another month after that, just to make sure she is getting what she needs, as well as learns that food really is her friend. The good news is that the equipment should be easy to operate and we will need little more than a few check ups with a pediatrician to monitor her weight gain. This means that we can move forward with our plans to move to NM.
Right now, Kevin is scheduled to start at the academy on June 8th. If we get home from the hospital by Sunday, that will give us roughly 5 days to get our stuff packed and get on the road, 2 days for travel, and then we will be in our new "home sweet home" of Roswell, NM.
Kevin's last day of work is tonight. He took some vacation time to help pack up the house and to make arrangements for our move. We will be taking turns staying with Anslie in the hospital and packing at home. It's going to be quite a feat to accomplish, but we are anxious to move on with our life, and happy that Anslie will be healthy enough for us not to worry about her.
Things are starting to look up, even though we still have another 2-4 days here in the hospital. Again, visitors are welcome! And, you can bring your kiddos too! Anslie would love to see some her old friends! We are at Rady Children's Hospital, room 243. Visiting hours are 9am to 8pm!