Anslie and I went to meet her new pediatrician today, Dr. Karen Carson. I really liked her and thought she was attentive, compassionate, and proactive. I also really like the nurses and office staff and I think we will be in good hands. We spent a couple hours at the Dr.'s office today, going through Anslie's history and recommended course of treatment.
We have an appointment with a pediatric GI next Tuesday and Dr. Carson said she knows the GI we will be seeing and that she would email him with the information we discussed at our appointment today and her recommendations. Give him a 'heads up' so to say so that he is prepared with all of the answers to the questions we have.
I also met a member of their staff named Barbara aka "the Bull Dog" who is their "Patient Care Coordinator." Her job is to send referrals and battle with the insurance companies. She said to me,"My job is to make sure our babies get what they need, and I promise you your baby will be taken care of!" Amazing. I feel sooooo taken care of!
So far I am really pleased with the level of patient care we have received! The one thing I am a little worried about is that Dr. Carson said that she would be recommending that a "permanent" G tube be surgically put into Anslie's stomach (through her abdomen) instead of running an NG tube through her nose. She said that she doesn't know the length of time before we can get Anslie off the formula feeds, but that by doing things that way it will be much easier to care for and protect the tubing. No more tubes hanging from her her nose that can get caught on things, no more worrying if Anslie will pull the tube out herself, no more inquisitions from strangers on her health condition. I can see the value in that, at the same time I hate the thought of cutting a hole through her perfect little tummy. But, the operation is an outpatient procedure and one that the doc said is "no big deal". And kids heal quickly and if there is a scar left, she is so little that I doubt it will be noticeable when she grows up.
Anyway, this is all still just a possibility. I will have more info next week after we see the GI. Here's to hoping the news is good!
PS - Anslie weighed in at 19 lbs 0.5 oz. At her last weigh-in exactly 2 weeks ago, she weighed 18 lbs 4 oz. She has gained almost a whole pound in two weeks! That's amazing, for her!!!